New York – Down Syndrome Organizations
There are currently 29 Down syndrome organizations in New York:
- Alexander’s Angels Inc.
- Association for Children With Down Syndrome
- Bronx and Manhattan Parents of Down Syndrome
- Chautauqua Daisy (Down Syndrome Youth) Group
- Down Syndrome Advocacy Foundation (DSAF)
- Down Syndrome Aim High Resource Center
- Down Syndrome Amongst Us
- Down Syndrome Association of Central New York
- Down Syndrome Association of the Hudson Valley
- Down Syndrome Association of St. Lawrence County
- Down Syndrome Association of Westchester
- Down Syndrome Connection of Long Island
- Down Syndrome Info Network of the Twin Tiers
- Down Syndrome Information Network of Southern Tier NY
- Down Syndrome Parent Group of Western New York
- Down Syndrome Parent Support Group of Genesee County
- Down Syndrome Support Group of Tompkins-Cortland Area
- Family and Friends Down Syndrome Association of Niagara
- Flower City Down Syndrome Network
- Franklin County Down Syndrome Society
- GiGi’s Playhouse (New York City)
- GiGi’s Playhouse (Syracuse)
- GiGi’s Playhouse (Westchester)
- Kennedy-Willis Center on Down Syndrome
- Manhattan Down Syndrome Society
- Mohawk Valley Down Syndrome Support and Awareness Group
- North Country Down Syndrome Associates, Inc.
- Trisomy 21 Foundation of Northern NY
- Westchester Arc Parent Assistance Committee on Down Syndrome
Alexander’s Angels Inc.
| Address: | 425 North Broadway, #486, Jericho, NY 11753 |
| Phone: | 516-361-7263 |
| Email: | alexandersangels@gmail.com |
| Organization Leader: | Esther Gómez-Nieto, President |
| Website: | www.alexandersangels.org |
Association for Children With Down Syndrome
| Address: | 4 Fern Place, Plainview, NY 11803 |
| Phone: | (516) 933-4700 |
| Email: | info@acds.org, msmith@acds.org |
| Organization Leader: | Michael Smith, exec director |
| Website: | www.acds.org |
Bronx and Manhattan Parents of Down Syndrome
| Address: | 1045 Hall Place, #3, Bronx, NY 10459 |
| Phone: | 917-834-0713 |
Chautauqua Daisy (Down Syndrome Youth) Group
| Address: | 214 Arlington Ave., Jamestown, NY 14701 |
Down Syndrome Advocacy Foundation (DSAF)
| Address: | PO Box 12173, Hauppauge, NY 11788 |
| Phone: | 516-983-7008 |
| Email: | dsaf03@gmail.com |
| Organization Leader: | Cathy Hoffman, Administrator |
| Website: | www.dsafonline.org |
Down Syndrome Aim High Resource Center
| Address: | 22 Corporate Woods Blvd., 5th floor, Albany, NY 12180 |
| Phone: | 518-438-1113 |
| Email: | info@dsahrc.org, dlang@dsahrc.org |
| Website: | www.dsahrc.org |
Down Syndrome Amongst Us
| Address: | 32 Rutledge St., Brooklyn, NY 11249 |
| Email: | info@dsau.org, downsyndrome@earthlink.net |
| Organization Leader: | Sarah Sander – Editor, Publisher |
| Website: | www.dsau.org |
Down Syndrome Association of Central New York
| Address: | PO Box 5, Manlius, NY 13104 |
| Phone: | 315-682-4289 |
| Email: | dsaofcny@aol.com |
Down Syndrome Association of the Hudson Valley
| Address: | PO Box 161, Hopewell Junction, NY 12533 |
| Phone: | (845) 226-1630 |
| Email: | info@dsahv.org |
| Organization Leader: | Melissa Deschamps Executive Director |
| Website: | www.dsahv.org |
Down Syndrome Association of St. Lawrence County
| Address: | PO Box 304, Canton, NY 13617 |
| Phone: | 315-562-2118 |
| Email: | dsaofslc@gmail.com |
Down Syndrome Association of Westchester
| Address: | 85 Candlewood Road, Scarsdale, NY 10583 |
| Phone: | 914-723-6568 |
| Email: | ken@westchesterdsa.org |
Down Syndrome Connection of Long Island
| Address: | PO Box 2402, Halesite, NY 11743 |
| Phone: | 631-427-4395 or 631-533-2864, 631-721-3292 |
| Email: | info@dscli.org, vregan@dscli.org |
| Website: | www.dscli.org |
Down Syndrome Info Network of the Twin Tiers
| Address: | 300 Scenic View, Horseheads, NY 14845 |
| Phone: | 607-734-6151, 607-739-0272 |
| Email: | dsintt@gmail.com, hecklece@stny.rr.com |
| Website: | www.downsyndromeintt.org |
Down Syndrome Information Network of Southern Tier NY
| Address: | PO Box 59, Endicott, NY 13760 |
| Email: | kdevine@dsinstny.org, info@dsinstny.org |
| Website: | www.dsinstny.org |
Down Syndrome Parent Group of Western New York
| Address: | 547 Englewood Ave., Kenmore, NY 14223 |
| Phone: | 716-832-9334 |
| Email: | dspgwny@hotmail.com |
| Organization Leader: | Presidents: Amy Monson Heidi Wieczorek |
| Website: | www.dspgwny.org |
Down Syndrome Parent Support Group of Genesee County
| Address: | 2121 Lewiston Road , Oakfield, NY 14125 |
| Phone: | 585-344-2092 |
| Email: | downsyn@iinc.com |
Down Syndrome Support Group of Tompkins-Cortland Area
| Address: | 16 Ferguson Road, Dryden, NY 13053 |
| Phone: | 607-844-4050 |
| Email: | downsyndrometca@gmail.com |
Family and Friends Down Syndrome Association of Niagara
| Address: | 4661 Lower River Road, Lewiston, NY 14092 |
| Phone: | 716-870-4904 |
| Email: | Trisominds21@aol.com |
| Website: | www.dsaniagara.org |
Flower City Down Syndrome Network
| Address: | 2117 Buffalo Road., #132, Rochester, NY 14624 |
| Phone: | 585-568-7421 |
| Email: | info@fcdsn.com |
| Organization Leader: | Chris Tumminelli President |
| Website: | www.fcdsn.com |
Franklin County Down Syndrome Society
| Address: | 28 Third St. , Malone, NY 12953 |
| Phone: | 516-521-3012 |
| Email: | shannonmmcardle@gmail.com |
| Website: | www.fracodssociety.synthasite.com |
GiGi’s Playhouse (New York City)
| Address: | 106 W. 117th St., New York, NY 10026 |
| Phone: | 646-801-7529 |
| Email: | nyc@gigisplayhouse.org |
| Organization Leader: | Victoria Nadal, Executive Director |
| Website: | gigisplayhouse.org/newyork |
GiGi’s Playhouse (Syracuse)
| Address: | 5885 East Circle Drive, Suite 250, Cicero, NY 13039 |
| Phone: | 315-288-7529 |
| Email: | syracuse@gigisplayhouse.org |
| Organization Leader: | Heather Rodriguez, President |
| Website: | gigisplayhouse.org/syracuse |
GiGi’s Playhouse (Westchester)
| Address: | 720 Saw Mill River Road Ardsley, NY 10502 |
| Phone: | 914-479-5566 |
| Email: | westchester@gigisplayhouse.org |
| Organization Leader: | Tracy Smith, Program Director |
| Website: | gigisplayhouse.org/westchester |
Kennedy-Willis Center on Down Syndrome
| Address: | 3 Chenango Rd, Edmeston, NY 13335 |
| Phone: | 607-965-8655, 607-965-8377 ext. 128 |
| Email: | info@pathfindervillage.org, info@pathfinder.tzo.com |
Manhattan Down Syndrome Society
| Address: | 124 West 121 Street , New York, NY 10027 |
| Phone: | 646-261-5334 |
| Email: | manhattandowns@gmail.com |
Mohawk Valley Down Syndrome Support and Awareness Group
| Address: | 1020 Mary St, Utica, NY 13501 |
| Phone: | (315) 738-0794 ext. 223 |
| Email: | info@upstatecp.org |
| Organization Leader: | Louis B. Tehan, Upstate Cerebral Palsy President and CEO |
| Website: | upstatecp.org/mohawk-valley-down-syndrome-awareness-group |
North Country Down Syndrome Associates, Inc.
| Address: | 64 Prospect Ave., Plattsburgh, NY 12901 |
| Phone: | 518-563-5553 |
| Email: | rotzt@westelcom.com |
Trisomy 21 Foundation of Northern NY
| Address: | PO Box 236, Black River, NY 13612 |
| Phone: | 315-788-0869 |
| Email: | info@downsyndromesupportnny.org |
| Website: | downsyndromesupportnny.org |
Westchester Arc Parent Assistance Committee on Down Syndrome
| Address: | 26 Blackthorn Lane, White Plains, NY 10606 |
| Phone: | 914-654-0238 |
| Email: | ebean37@hotmail.com |
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