March 30th, 2016 by Global Down Syndrome Foundation
March 14th, 2016 by Global Down Syndrome Foundation
Louis “Louie” Rotella IV—the charming boy who inspired his dad to create the celebrated story of acceptance The Little King and His Marshmallow Kingdom—will inspire an audience of 1,200 when he takes to the runway as the 2016 Ambassador at Global’s Be Beautiful Be Yourself Fashion Show on Saturday, November 12.
“‘Life with Louie’, that is the saying around our house,” says his mom, Jill Rotella. “Life with Louie is filled with joy, tears, laughter, Marshmallows, and lots of lessons in patience and humor. Our lives are better because of the journey that we travel with Louie! We will be proud and honored to be by Louie’s side during this next adventure on his journey as the 2016 Be Beautiful Be Yourself Fashion Show Ambassador!”
Each year, in addition to choosing 20 self-advocates to model in their fashion show, Global selects an ambassador who graces the front cover of their award-winning invitation. Ambassadors and their families are dedicated to garnering support for Global’s work towards significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
Louie’s family owns and operates Rotella’s Italian Bakery Inc., in Omaha, Nebraska, founded in 1921. Baking is a family tradition that goes back five generations, and you can learn more about this dynamic family in this excerpt from Down Syndrome World magazine.
February 15th, 2016 by Global Down Syndrome Foundation
Two notable articles about the current state of Alzheimer’s disease and Down syndrome research cite the Global Down Syndrome Foundation’s pivotal role in propelling this field to the forefront of scientific research.
Appearing in The Wall Street Journal, the article “Down Syndrome Is Thought to Hold Clues to Alzheimer’s” acknowledged Global’s leadership, along with the Linda Crnic Institute for Down Syndrome and the national Alzheimer’s Association, in their collective efforts to raise awareness, galvanize scientific interest and secure funding for research on Down syndrome and Alzheimer’s disease. The three groups organize annual roundtables and collaborate through the Alzheimer’s Disease and Down Syndrome Joint Grant Initiative. The initiative funds grants focused on understanding the development and devising treatments for Alzheimer’s disease in individuals with Down syndrome.
In “As Boomers Age, Alzheimer’s Research Picks Up. Will A Cure Follow?” written for Colorado Public Radio, author John Daley spoke with Huntington Potter, PhD, the Crnic Institute’s Director of Alzheimer’s Research, and Director of the Rocky Mountain Alzheimer’s Disease Center at the University of Colorado School of Medicine, about his important work studying Alzheimer’s disease and Down syndrome, including a push to create a blood test able to detect those at high risk for developing Alzheimer’s.
And while Potter focuses on the genetic connections, his partner Jonathan Woodcock, MD, Clinical Director at the Rocky Mountain Alzheimer’s Disease Center, and Assistant Professor and Clinical Director, for the Memory Disorders Clinic in the Department of Neurology at The University of Colorado School of Medicine, concentrates on crucial clinical trials, such as a current trial of a drug called Leukine.
To learn more about the relationship between Down syndrome and Alzheimer’s disease and about Global’s research initiatives in this regard visit globaldownsyndrome.org/down-syndrome-and-alzheimers-disease/