Archive for the ‘Blog’ Category

The Art of Activism: Raymond Hu

December 6th, 2014 by Global Down Syndrome Foundation

For San Francisco Bay Area artist Raymond Hu, 37, each brushstroke has the potential to inspire people to be better stewards of the planet.

Down Syndrome World
This article is an excerpt from Down Syndrome World magazine, a publication of the Global Down Syndrome Foundation. To receive Down Syndrome World, become a member of the Global Down Syndrome Foundation today at www.DownSyndromeWorld.org

Raymond Hu

Hu was once a reluctant artist. He initially declined his father’s suggestion that he study Chinese brush painting, but when he finally relented, he was hooked. Hu began learning the medium from internationally acclaimed artist and art professor Lampo Leong in 1990. The work of Jackson Pollock and Georgia O’Keeffe also influenced the development of his style.

After experimenting with painting flowers and landscapes, Hu began creating strikingly evocative paintings of animals, particularly endangered species. The expressiveness of the creatures’ faces and eyes invites viewers to ponder their own impact on the animals’ habitats and futures.

"Cassowary" by Raymond Hu

"Cassowary" by Raymond Hu

Animals are like our friends – we have to protect them,” Hu said. “Part of the reason I paint animals is because I want people to care about them. There are many ways to be an activist. I want to encourage people to be more ecologically and environmentally mindful.”

Hu believes everyone goes through two phases in life.

“You begin as an explorer,” he said. “As you get older, you become an adventurer and begin taking risks.”

Hu’s latest adventure is portrait painting. His next may be education.

“Art is a good way to develop cognitive skills, and it’s fun,” he said. “I’ve attended several National Down Syndrome Congress Annual Conventions in the past 20 years, and I may have inspired many young adults with disabilities to enter the field of fine arts. One day I hope to become a teacher, so I can teach children about the arts and how to paint.”

Read more about Hu’s artistic methods and see more of his artwork by accessing the Down Syndrome World digital edition, available to members of the Global Down Syndrome Foundation. JOIN TODAY!

Salah Foundation grant provides $200,000 for Global

December 2nd, 2014 by Global Down Syndrome Foundation

A generous matching grant from the Salah Foundation will provide $200,000 to underwrite Global’s important new initiative for adults with Down syndrome.

Salah Foundation

Rob Shama, Fred Churbuck, Chase Turner Perry, Megan Fearnow & Dan Fearnow

Salah Foundation

The $200,000 in total matched funds allows Global to work with world-class researchers to create evidence-based educational programs for adults with Down syndrome in the areas of safety, health, nutrition, and communication & speech. Global intends to share the results of the research with the greater community in the hopes that programming that is proven will be replicated.

The Salah Foundation is a private foundation that supports nonprofit organizations in the United States that strengthen families and communities and advances individuals to become productive and responsible citizens.

The Salah Foundation’s capacity building grant of $100,000 was matched by generous supporters at Global’s Be Beautiful Be Yourself Fashion Show, where donors rallied to get the program started.

The Salah Foundation was created and funded through the generosity and lifelong success of James M. “Jim” Salah, a first generation American — son of immigrants who courageously left Lebanon and lived the American dream.

Jim Salah started his own construction business in Boston and grew it into a formidable company handling some of the city’s largest utility projects. He also ventured into real estate development and heavy equipment leasing, all while investing in nonprofit organizations and his community.

The Salah Foundation is headed by Jim Salah’s niece, Noreen Salah Burpee. Global thanks the Salah Foundation, Noreen Salah Burpee, Fred Churbuck and Megan Fearnow for understanding the impact and the capacity-building this grant has on our community, and for believing in a brighter future for our children and adults with Down syndrome.

Global will launch the evidence-based educational programs for adults with Down syndrome in 2015 in collaboration with several universities. Each quarter will touch upon one of four subjects — safety, health, nutrition, and communication & speech. With an anticipated 1:3 ratio and research collected pre-, during and post-, the goal is to provide best practices to post-secondary and life-skills programs around the country.

NIH DS-Connect registry unites Down syndrome community

December 2nd, 2014 by Global Down Syndrome Foundation

DS-Connect promises a path to research breakthroughs. If you are a parent or a guardian, help your loved one with Down syndrome and sign up now.

Sign up for DS-Connect today!

DS-Connect registry

DS-Connect: The Down Syndrome Registry is a vital new resource for people with Down syndrome, giving thousands of individuals access to a community of researchers working to improve their health and well-being.

Launched by the National Institutes of Health (NIH), the registry was first conceived in 2007 as part of the NIH’s 10-year Research Plan on Down Syndrome. Now that it has launched, DS-Connect provides a way for individuals with Down syndrome and their families to learn about, and take part in, research studies focused on related conditions such as developmental delays and congenital heart defects.

Global Down Syndrome Foundation helps lay the groundwork

DS-Connect registryThe registry began to take shape in December 2010, when Global and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) at the NIH co-hosted the first “Down Syndrome: National Conference on Patient Registries, Research Databases and Biobanks.”

During that meeting, 70 representatives from Global, the Linda Crnic Institute for Down Syndrome, NICHD, NIH, the Centers for Disease Control and Prevention, and other non-governmental organizations met to discuss the issues and implications of creating a such patient database.

“We wanted to create tools that would facilitate research for Down syndrome,” said Melissa Parisi, M.D., Ph.D., Chief of the Intellectual and Developmental Disabilities Branch at the NICHD. “NIH and Global worked together to identify leaders in the Down syndrome community who could help with next steps in the creation of the registry.”

The conference addressed a number of crucial issues related to the creation of an online patient database, including confidentiality concerns and short-, mid- and long-term goals. The launch of the registry is the ultimate successful outcome, and thus far, over 2,000 individuals with Down syndrome have registered.

Elevating Down syndrome research to new heights

Dr. Melissa Parisi

Dr. Melissa Parisi

“This is the first time the Down syndrome community has had a resource that involves active participation in medical research,” Dr. Parisi said. “DS-Connect is designed to connect them with scientists working to better understand the condition and develop treatments that will help improve their quality of life.”

People with Down syndrome are living longer now than ever before, so it has become crucial to understand the health problems within the community and how to best treat those problems.

The secure, confidential database does more than link researchers with potential study subjects, however. Families are able to access lists of specialists, such as healthcare providers with experience treating children with Down syndrome, as well as educational resources that enable them to learn more about various conditions, such as Alzheimer’s.

“This is an opportunity for these families to learn about Down syndrome, not only for their own child, but also for the broader community,” Dr. Parisi said. “But it’s also about the research community giving back.”

Sie Center’s new speech language pathologist Amanda Seligman

December 2nd, 2014 by Global Down Syndrome Foundation

The Sie Center for Down Syndrome’s new speech language pathologist Amanda Seligman shares important speech development tips for parents of children with Down syndrome.

Amanda Seligman and ShimaThe Sie Center for Down Syndrome at Children’s Hospital Colorado is one of the largest multi-disciplinary teams in the world providing medical care and research for children with Down syndrome.

Recently, Amanda Seligman, M.A., CCC-SLP, joined the Sie Center as the team lead for speech language pathology. Global sat down with Amanda to learn more.

To make an appointment with Amanda Seligman, please call 720-777-6750.

1. What inspired you to be part of the Sie Center?

I joined the Sie Center in December 2013. I was inspired to be a part of the Sie Center by the incredible children this clinic serves as well as the expertise and talent of the other employees who work here.

2. How did you first get involved in care for children with Down syndrome?

Way back in college, I worked at a summer camp for children who are differently-abled and there was a week for children with Down syndrome. I had so much fun that week, and it later inspired me to become motivated to work at the Rise School of Denver, an inclusive preschool that serves many families of children with Down syndrome, which eventually led to my position at the Sie Center.

3. Describe your role as a speech language pathologist at the Sie Center.

The Sie Center speech language pathologist completes speech language consultations in the Sie Center multi-discipline clinic to answer questions and provide recommendations and strategies to support families with helping their child communicate more effectively. I also provide full speech language evaluations, individual and group speech language treatment, and parent education programs.

4. What makes the Sie Center and its multi-disciplinary team so unique?

Sie Center for Down Syndrome

It is unique to have a center with so many excellent professionals working together to help children with Down syndrome maximize their health and potential.

5. What has been the most surprising thing you’ve discovered since starting to work at the Sie Center?

I have been surprised by the limited awareness of Down syndrome in many communities across the state.

6. What are your hopes for clinical research at the Sie Center?

Over time I hope that the Sie Center speech team will be involved in research on speech and language development and treatment for children with Down syndrome.

7. What are your long-term goals for helping improve the lives of children with Down syndrome?

Long term, I would love to see the Sie Center speech language therapy team grow both in staff, programming, and outreach to help meet the communication needs of children with Down syndrome.

8. What’s the most important thing you think parents of a child should know in terms of speech development?

It is important to create opportunities for your child to communicate throughout the day during everyday routines. Try not to anticipate your child’s needs. Instead, hold back things you know your child wants and wait to allow them an opportunity to initiate communication with you, whether they use a gesture, facial expression, sign, or word. Tune into your child’s natural communication and then model words that match their intent. For example, if your child reaches to indicate he wants his juice, say/model the word and sign, “juice.” Make sure to do this every time, in a consistent fashion. Kids with Down syndrome need lots of practice learning how to be powerful communicators, and parents can help by setting the stage for this practice.

9. Tell us a little bit about yourself.

I’m originally for Cincinnati, Ohio, and attended undergraduate school at Indiana University-Bloomington and then graduate school at CU Boulder. When I’m not busy working with children with Down syndrome, I enjoy being in the mountains, practicing and teaching yoga, and spending time with my husband, friends and family.

Learn more about the Sie Center:

For Vollbrachts, supporting Global is a family investment

December 2nd, 2014 by Global Down Syndrome Foundation

For Bill and Leslie Vollbracht, supporting the Global Down Syndrome Foundation is a family investment in their granddaughter and others who have Down syndrome.

Bill and Leslie VollbrachtSeasoned entrepreneurs, the Vollbrachts are betting on Global’s research, medical care and outreach. They recently sat down with Global to talk about Colorado, family and why support for Down syndrome medical care and research is so important.

1. You founded and built Land Title Guarantee Company, one of the oldest and most successful title insurance companies in Colorado. What was it like to be a Colorado pioneer?

We feel so fortunate to live in Colorado. It is where we always wanted to live and work. To have built a successful company here and to be considered Pioneers is wonderful.

2. How do you apply your business background to your philanthropic giving?

We are very lucky that Land Title was so successful. We feel that giving back to the community that made us successful is very important and something one should just do.

3. Your granddaughter Katherine Vollbracht Winfield happens to have Down syndrome. How has she changed your lives?

Katherine Vollbracht Winfield

Kate is a wonderful little girl a real joy in our lives. We have learned that she is really just like any other child. She has good days and bad days, happy days and sad days. What we notice the most is her very strong opinions and her very heartfelt emotions. Her learning is just slower.

4. How important was the Global Down Syndrome Foundation and the Sie Center for Down Syndrome at Children’s Hospital Colorado for Katherine’s development?

The Global Down Syndrome Foundation and the Sie Center were very instrumental in Kate’s early development. They gave us and especially her parents, the Winfields, the awareness and confidence to know she could grow up and live a productive life. They stressed the importance of early intervention and inclusion and that inclusion is very possible. If Kate were to ever have a medical or social problem, the Sie Center is the place the Winfields would think of for expert and exceptional help.

5. How do you feel about your daughter and son-in-law managing the information age, work, children, and becoming advocates for people with Down syndrome?

We feel that their lives and Kirby III’s (Kate’s big brother) life is enriched by having Kate in it. Their involvement in the Down syndrome community both in Seattle and Denver is broadening their understanding of all people who are differently-abled. They will make a difference in this world.

6. What do you want people to know about Katherine?

We would like people to know that Kate is a very capable child who enjoys many things. She loves school, where she is the only child with Down syndrome in her class and has many friends. She also shows a real honesty with her feelings that some typical people have difficulty with.

7. What is the best thing about being a grandparent?

The Winfield Family

Having grandchildren is wonderful; we only wish they lived closer. Watching them grow and develop, laughing with them, talking and playing with them is a very special experience.

8. You are part of the Leadership Circle supporting Global’s marquee fundraiser and awareness-raiser – the Be Beautiful Be Yourself Fashion Show. Why should people support and attend this event?

People should support the Be Beautiful Be Yourself Fashion Show because of the numerous ways the event is creating true awareness about the world of Down syndrome. The amazing research done by the Linda Crnic Institute can be of value to not only the Down syndrome community but the entire world population.

9. What is the best advice you were ever given that you would like to pass on?

Lillian Starr, Bill’s aunt and a true pioneer in the women’s business world, gave him this advice, which he has remembered well and lived by: “Meet every commitment that you make.”

The National Institutes of Health (NIH) provides first request for applications specific to Down syndrome–Alzheimer’s disease research — a major step toward addressing the lack of funding for Down syndrome research.

Two institutes under NIH, the National Institute on Aging (NIA) and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) recently announced an ROI research grant opportunity called Biomarkers of Alzheimer’s Disease in Down Syndrome. The goal of this funding opportunity is to enable the identification of the longitudinal progression of Alzheimer’s disease in adults with Down syndrome using clinical, cognitive, imaging, genetic and biochemical biomarkers. The $5 million grant opportunity will fund either one or two grants exploring the connection between the two conditions. The application deadline is January 12, 2015.

Global’s advocacy helps pave the way

In 2006, the Global Down Syndrome Foundation discovered Down syndrome was the least funded genetic condition by the NIH despite being the most common such condition diagnosed in the United States.

To address this, Global worked with the NICHD and co-organized the National Conference on Patient Registries, Research Databases, and Biobanks in December 2010. NICHD continues to address the lack of funding for Down syndrome and has launched an important registry tool called DS-Connect: The Down Syndrome Registry.

In September 2012, Global and the Alzheimer’s Association organized the first-ever joint workshop bringing top scientists in the fields of Down syndrome and Alzheimer’s disease together. The workshop resulted in three significant milestones: the Down Syndrome–Alzheimer’s Disease Investigator Program which has provided $2 million in grant funding; the “Down Syndrome and Alzheimer’s Disease” Professional Interest Area at the Alzheimer’s Association that keeps research on the two conditions in the minds of decision-makers on funding; and a media spotlight on the relationship between the conditions.

Global’s advocacy efforts in Washington, D.C., has helped put Down syndrome and Alzheimer’s research at the fore. Just last month, Global arranged for Huntington Potter, Ph.D., Director of Alzheimer’s Disease Research at the Linda Crnic Institute for Down Syndrome on the Anschutz Medical Campus to address members of Congress about the importance of Down syndrome research and the potential it holds for treating or curing Alzheimer’s. Dr. Potter is the renowned scientist who discovered the mechanistic relationship between Down syndrome and Alzheimer’s, showing that Down syndrome and Alzheimer’s disease are “two sides of the same coin.”

Global’s collaboration with organizations such as the National Down Syndrome Congress, the National Down Syndrome Society, and the Alzheimer’s Association is driving the new emphasis on Down syndrome–Alzheimer’s research.

The importance of research

“Individuals with Down syndrome have been identified as high risk for developing Alzheimer’s disease,” said Melissa Parisi, M.D., Ph.D., NICHD Chief of the Intellectual and Developmental Disabilities Branch. “We want to know the biological indicators of Alzheimer’s in those with Down syndrome, as well as early signs that suggest the presence of Alzheimer’s disease so we can develop effective prevention and treatment.”

By age 40, almost all people with Down syndrome exhibit the hallmark amyloid plaques and tau tangles associated with Alzheimer’s, but only an estimated 50 percent of people with Down syndrome develop symptoms of dementia by age 50. Studying why this occurs could hold the key to finding a cure for Alzheimer’s.

At the NIA, the grants are part of the federal National Plan to Address Alzheimer’s Disease, which launched in 2012 with a goal of developing effective treatments for Alzheimer’s by 2025.

“The U.S. population as a whole is an aging society, and age is the biggest risk factor for Alzheimer’s disease,” said Laurie M. Ryan, Ph.D., NIA Chief of the Dementias of Aging Branch and Program Director of Alzheimer’s Disease Clinical Trials. “Additionally, people with Down syndrome are living longer lives and thus are becoming more affected by it.”

An estimated 5 million Americans age 65 and older are currently living with Alzheimer’s disease — and that number will only grow as baby boomers age.

Because adults with Down syndrome are at such a high risk for developing Alzheimer’s, studying how the disease develops in these individuals can provide a wealth of information.

“We want to learn as much as possible about Alzheimer’s,” Dr. Parisi said. “The partnerships formed between the community of scientific investigators, federal and private funders of research, and people with Down syndrome is incredibly important in advancing treatment options for everyone with Alzheimer’s disease.”

To learn more about or apply for the NIA/NICHD funding opportunity, click here. To take an active role in ongoing research, enroll in DS-Connect: The Down Syndrome Registry.

Watch Global’s tribute video to Senator Jerry Moran, spotlighting the importance of federal funding for Down syndrome-Alzheimer’s disease research:

Sie Center launches physical fitness program

October 6th, 2014 by Global Down Syndrome Foundation

The Sie Center for Down Syndrome at Children’s Hospital Colorado has launched a Health, Fitness, Functional Activity, Balance Training, Strength and Conditioning program for adolescents and young adults! See the flier below for more information, and if you are interested, contact Sarah Mann at 720-777-3561 or sarah.mann@childrenscolorado.org.

Sie Center Physical Fitness Program

For LA’s Jules Haimovitz, Global honors his sister

October 6th, 2014 by Global Down Syndrome Foundation

Jules HaimovitzPeople in the entertainment and media industry know Mr. Haimovitz as an industry leader having managed MGM Networks, Spelling Entertainment, Viacom Inc., and King World Productions, among others. Mr. Haimovitz has 37 years of operating experience. Today he is the Chief Executive Officer at Global Entertainment & Media Holdings Corporation and serves as Special Consultant to the Chairman and Chief Executive Officer at MGM Networks Inc.

What people might not know is what a devoted big brother Mr. Haimovitz was to his sister with Down syndrome.

1. You have both of your degrees in mathematics; what got you into the film and television industries?

Since I watched my first television show at 5 years old, I always had a love of television. My ambition growing up was to be a doctor, but my love of television motivated me to earn a second degree in television and radio at the same time I received my math degree. Eventually I chose television over medicine but continued my math graduate studies while I worked at ABC.

2. You worked for some of the biggest names and organizations in the business. Whom did you most admire?

Although I’ve never worked for him directly, I always admired Steve Ross, CEO of Warner Communications at the time. Steve had amazing foresight and the ability to generate phenomenal loyalty amongst his friends and colleagues. I also admired the founding team at Viacom: Ralph Baruch, Terry Elkes and Larry Hilford. Spinning off from CBS in 1971, they grew a fledgling company into a multibillion-dollar empire that eventually acquired its parent.

3. What lessons have you learned in the media industry that you would pass on to others?

Technology and dates may change, but audiences’ relationship with the content always stays the same.

4. Tell us about your sister. What is/was special about her?

She was the most loving and happiest person I knew.

5. How did you help make your sister’s life more fulfilling?

By just making sure she had the security and love every person needs.

6. What is so special about the Be Beautiful Be Yourself Fashion Show?

It allows these children to shine and recognize that the love they give is reciprocated.

7. What do you think about Global Down Syndrome Foundation’s work, and how will this help future generations of people with Down syndrome?

Global’s goal of developing programs for children with Down syndrome shows the community at large how much potential these children have when afforded the opportunities other children receive.

San Francisco philanthropist leaves generous bequest

September 8th, 2014 by Global Down Syndrome Foundation

Janice Selix and Chase Turner Perry

Janice Selix with great-grandson Chase Turner Perry

When Janice Viner Selix passed away peacefully this year at the age of 94, her family wanted to honor her life-long commitment to philanthropy and community. That legacy is now in place through a generous bequest to the Global Down Syndrome Foundation’s medical care and research in celebration of Janice and Alfred Selix’s great-grandson Chase Turner Perry.

The bequest was made with input from Janice and Alfred Selix’s family — daughter Susan & Randy Karsh, and grandchildren Greg Karsh and Casey & Brett Perry. The bequest will support the Shared Family Room at the Anna and John J. Sie Center for Down Syndrome at Children’s Hospital Colorado, fund a grant for Down syndrome and aspiration research, and establish the “Selix Family Down Syndrome and Alzheimer’s Development Fund” at the Linda Crnic Institute for Down Syndrome on the Anschutz Medical Campus.

Karsh family

Susan Karsh, Greg Karsh, Brett Perry, Randy Karsh, Casey Perry and Chase Turner Perry

“Mom quietly and generously supported so many students with the opportunity of higher education,” said Alfred and Janice Selix’s daughter Lynn Blankfort of Mill Valley, California. “Her quest to educate has been further extended in recognition of her great-grandson, Chase Perry, the ultimate student whose accomplishments thus far have taught others so much. May this gift continue to educate parents and family members in bettering the lives of those with Down syndrome and Alzheimer’s.”

The Shared Family Room at the Sie Center opened as part of the Sie Center’s new clinical space in 2013 and is intended as a place where clinicians and families can meet in a comforting environment to discuss diagnoses, plans and questions.

The Down Syndrome & Aspiration Research Grant at the Sie Center will fund important study into why children with Down syndrome are more likely to have aspiration problems and what treatments are best suited to helping them thrive. Aspiration research was particularly important to the Karsh and Perry families because of problems that Chase Turner Perry had with aspiration as an infant.

The Selix Family Down Syndrome and Alzheimer’s Development Fund will enable key scientists at the Crnic Institute, including Executive Director Tom Blumenthal, Ph.D., and Director of Alzheimer’s Research Huntington Potter, Ph.D., to go out into the community and spread awareness about the connection between Down syndrome and Alzheimer’s disease.

Dr. Huntington Potter

Dr. Potter is the scientist who discovered the mechanistic relationship between Down syndrome and Alzheimer’s and is leading the establishment of an Alzheimer’s research and care center in Colorado. Research into the connection may hold the key to better treatments that would benefit those with Down syndrome and those with Alzheimer’s. Virtually 100% of people with Down syndrome will have the plaques and tangles in the brain associated with Alzheimer’s disease, but only an estimated 50 percent will develop the symptoms associated with Alzheimer’s.

Chase Turner Perry

Janice Selix was born in Stockton, California, and moved to San Francisco at the age of 6, where she lived for the rest of her life. She was known for her warm, gracious, proud, caring and artistic nature, and she continually gave of herself, and generously contributed to those in need. She was preceded in death by her husband, Alfred.

Alfred and Janice Selix’s other daughter, Susan Karsh, and her husband, Randy, are ardent supporters of the Global Down Syndrome Foundation. Susan and Randy Karsh’s grandson, Chase Turner Perry, is a Global Down Syndrome Foundation Ambassador.

The Global Down Syndrome Foundation appreciates the longtime support, advocacy and friendship of the Karsh and Perry families and expresses its profound thanks for the Selix Family bequest and all of the great work it will help fund in support of benefiting the lives of people with Down syndrome.

September 7th, 2014 by Global Down Syndrome Foundation

Tom Blumenthal at the Crnic Lab
Tom Blumenthal in the lab at the Linda Crnic Institute for Down Syndrome

Global Briefs Congress on
Critical Down Syndrome Research
Wednesday, September 10, 2014
8:00 am to 9:30 am
Cannon House Office Building Room 122

The Congressional Down Syndrome Briefing Series is co-organized by the Global Down Syndrome Foundation, the National Down Syndrome Congress and the National Down Syndrome Society. This important briefing will focus on global research findings related to Down syndrome, including the link to Alzheimer’s disease, and opportunities for future research efforts.

Among the speakers updating members of Congress about the latest research will be:

  • Members of the Congressional Down Syndrome Caucus
  • Michelle Livingston, Senior Director of Operations and Government Affairs for the Global Down Syndrome Foundation
  • Dr. Thomas Blumenthal, Executive Director, Linda Crnic Institute for Down Syndrome, University of Colorado School of Medicine
  • Dr. Huntington Potter, Director of Alzheimer’s Research at the Crnic Institute and the University of Colorado School of Medicine’s Department of Neurology
  • Jon Colman, President of the National Down Syndrome Society
  • Sara Weir, Vice President of Advocacy and Affiliate Relations for the National Down Syndrome Society
  • Susan Goodman, Director of Government Affairs for the National Down Syndrome Congress
Rep. Eleanor Holmes Norton
Alzheimer's Briefing
Rep. Mike Coffman

Our Congressional briefing is held in conjunction with the Congressional Down Syndrome Caucus, and Representatives Cathy McMorris Rodgers, Pete Sessions, Chris Van Hollen and Eleanor Holmes Norton

RSVP to Deana Perlmutter at dperlmutter@globaldownsyndrome.org


Dr. Huntington Potter and Friends
Dr Huntington Potter and Friends

Dr. Huntington Potter and Alzheimer’s-Down syndrome research

Dr. Potter is the scientist who discovered the mechanistic relationship between Down syndrome and Alzheimer’s disease. Learn more about his groundbreaking research and why studying people with Down syndrome could benefit both people with Down syndrome and people with Alzheimer’s disease.

Global’s Alzheimer’s initiatives

Global is committed to raising awareness and important research funding for Down syndrome and Alzheimer’s disease. Learn more about Global’s Alzheimer’s initiatives.