Global Down Syndrome Foundation Launches Comprehensive Directory of Down Syndrome Medical Care Centers

Anna and John J. Sie with granddaughter Sophia and Children's Hospital's Jim Shmerling at opening of Sie Center for Down SyndromeTuesday, Nov. 19, 2013

WHAT: The Global Down Syndrome Foundation has launched a comprehensive directory of Down syndrome medical care centers in the U.S. This important directory provides people with Down syndrome and their families with accurate and useful information about medical care centers near them, by state. The directory includes 66 centers, many of which have filled in all the directory data, including:

  • ages served
  • dates and hours of operation
  • types of medical services and specialties provided
  • types of insurance accepted
  • contact information
  • wait list information

WHO: An estimated 400,000 people in the United States have Down syndrome, which is the most common chromosomal disorder. Families, caregivers and individuals with Down syndrome are all affected by the availability and quality of medical care.

WHY: People with Down syndrome have specialized medical needs that sometimes cannot be addressed or assessed by general care providers. To this end, finding medical care centers specializing in patients with Down syndrome may be important.

Input from parents and caregivers, has indicated frustration with the lack of thorough and easily searchable information about such medical centers. The Global Down Syndrome Foundation’s directory will address and aims to reverse this frustration by providing accurate and thorough information about Down syndrome medical care centers in the U.S.