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Down Syndrome Medical Care Centers in the U.S.
Massachusetts Down Syndrome Medical Care Centers

Massachusetts Down Syndrome Medical Care Centers

There are currently 3 Down syndrome medical care centers in Massachusetts:

Massachusetts General Hospital Down Syndrome Program – Boston
Boston Children’s Hospital Down Syndrome Program – Boston
Aging Consultation Program by the Department of Developmental Services – Worcester

Massachusetts General Hospital Down Syndrome Program, Boston, MA
Affiliation:	Massachusetts General Hospital
Summary:	The Mass General Hospital Down Syndrome Program integrates state-of-the-art resources with compassionate, comprehensive care through a multi-disciplinary approach. National experts from Mass General Hospital, Mass General for Children, and Massachusetts Eye and Ear Infirmary are ready to help your family member with any medical issue that may occur.
Ages Served:	Prenatal – Adulthood
Hours and Days of Operation:	Monday through Friday.
Address:	Yawkey Center for Outpatient Care, 55 Fruit St., Boston, MA 02114
Website:	https://www.massgeneral.org/children/down-syndrome
Email:	downsyndrome@partners.org
Appointments:	617-643-8912
Phone Number:	617-643-8912 Fax: 617-726-4148
Clinical Director:	Dr. Brian G. Skotko
Services provided:
Behavioral MD Psychologist Nutritionist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Clinical Care Coordinator Geneticist/Pediatrician
Year Established:	2012
Patients with Down Syndrome Seen Annually:	600
Length of Waitlist:	We are closed to new patients, except for new babies born at our hospital.
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Boston Children’s Hospital Down Syndrome Program, Boston, MA
Affiliation:	Boston Children’s Hospital
Summary:	We offer multidisciplinary family-centered care from birth to age 22. Children ages birth to 3 see a team including developmental pediatrician, physical therapist, speech pathologist with special expertise in feeding/swallowing, and an audiologist. Children ages 3 to 22 have a developmental pediatric visit coordinated with other specialists as needed. We also offer prenatal consultation through the Fetal Care and Surgery Center at Boston Children’s Hospital.
Ages Served:	Birth – Age 22
Hours and Days of Operation:	Wednesday and Thursdays, by appointment
Address:	2 Brookline Place 4th floor, Brookline, MA 02445
Website:	childrenshospital.org/downsyndrome Facebook: https://www.facebook.com/BostonChildrensHospital/ Instagram: https://www.instagram.com/bostonchildrens/
Email:	downsyndromeprogram@childrens.harvard.edu
Appointments:	857-218-4329
General Phone Number:	857-218-4329
Clinical Director:	Meredith Close, MD and Angela Lombardo, Program Manager
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Psychiatrist Nurse Practitioner Genetic Counselor Dentist/Orthodontist Neurology Fellow
Year Established:	1967
Down Syndrome Patients Seen Annually:	More than 500
Length of Waitlist:	1-2 years
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Aging Consultation Program by the Department of Developmental Services
Affiliation:	Tewksbury Hospital Central Residential Services
Summary:	The Aging and Developmental Disabilities Program is an outpatient consultative service. It is open to any client served by the Massachusetts Department of Developmental Services who has questions or concerns related to growing older. Adults with Down syndrome comprise a significant proportion of the patients seen in consultation. The common theme for patients seen in consultation is regarding change as a function of growing older: either a change in memory, function, or behavior. Dr. Moran is a geriatrician specializing in adults with I/DD, and evaluations include memory testing, functional assessments, and a comprehensive medical workup of the root cause of observed changes.
Ages Served:	Ages 45+
Hours and Days of Operation:	Wednesdays by appointment, virtual only
Address:	324 Clark Street, Front, Worcester, MA 01606
Email:	lisa.cobb@mass.gov
Website:	https://www.mass.gov/aging-with-intellectual-and-developmental-disability
Appointments:	774-314-3560
Clinical Director:	Julie Moran, D.O. Consultant, Intellectual and Developmental Disabilities/Geriatrics, Clinical Instructor of Medicine, Harvard Medical School
Services provided:
Behavioral MD Psychologist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Developmental Pediatrician
Other Services Provided:	Alzheimer’s Screening, D.O. Geriatrician specializing in adults with intellectual and developmental disabilities
Year Established:	2008
Patients with Down Syndrome Seen Annually:	100+
Length of Waitlist:	6 months
Medicaid Accepted?	No, Services provided by the Department of Developmental Services
Insurance Accepted?	No, Services provided by the Department of Developmental Services

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