North Carolina Down Syndrome Medical Care Centers


There are currently 2 Down syndrome medical care centers in North Carolina:

Down Syndrome Center – Charlotte

Affiliation: Levine Children’s Hospital at Carolinas Medical Center
Ages Served: All
Hours and Days of Operation: Third Thursday of each month
Address: 1000 Blythe Blvd., Charlotte, NC 28203
Website: www.levinechildrenshospital.org/body.cfm?id=142
Email: amy.blevins@carolinashealthcare.org
General Phone Number: 704-381-6810
Clinical Director: Amy Blevins, MS, CGC, clinic coordinator
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Geneticist/Pediatrician
Year Established: 1994
Patients with Down Syndrome Seen Annually: 30 through DS clinic (and 200+ through our general genetics clinic)
Length of Waitlist: Yes, several months for DS clinic; shorter wait for general genetics clinic with triage and work-in appts for babies with a new diagnosis
Medicaid Accepted? NC Medicaid
Insurance accepted? Yes

Duke Children’s Comprehensive Down Syndrome Program – Durham

Affiliation: Duke University Medical Center
Summary: The Duke Comprehensive Down Syndrome Program was developed to provide family-centered medical care for individuals with Down syndrome. Using the guidelines developed by the American Academy of Pediatrics and Down Syndrome Medical Interest Group for systematic, preventative care, our physicians work in conjunction with the patient’s primary care provider. The clinic team focuses on maximizing the development of individuals with Down syndrome by managing medical issues, connecting them with community resources, and teaching families to advocate for their children.
Ages Served: Pediatric (under 18)
Hours and Days of Operation: 8 a.m. – 3 p.m., the first and third Thursdays of the month in Durham and the second Wednesday of the month in Raleigh
Address: 3000 Erwin Road, Durham, NC 27705
Website: https://www.dukehealth.org/treatments/genetic-disorders/downsyndrome
Email: sarah.hart@duke.edu
Appointments: 919-684-0307
General Phone Number: 919-613-3807
Clinical Director: Dr. Priya Kishnani
Services provided:
 Behavioral MD
 Psychologist
 Nutritionist
 Physical Therapist
 Physical Therapist
 Family Practitioner
 Apraxia Specialist
 Speech and Language Pathologist
 Audiologist
 Social Worker
 Education/Inclusion Specialist
 Nurse Practitioner
 Genetic Counselor
 Geneticist/Pediatrician
 Feeding Specialist
Year Established: 1995
Patients with Down Syndrome Seen Annually: 450
Length of Waitlist: 3-4 months
Medicaid Accepted? Yes
Insurance accepted? Yes

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