Pennsylvania Down Syndrome Medical Care Centers
There are currently 5 Down syndrome medical care centers in Pennsylvania:
- Down Syndrome Center of Western Pennsylvania – Pittsburgh
- Eastern Pennsylvania Down Syndrome Center – Trexlertown
- Jefferson Continuing Care Program – Philadelphia
- Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia
- Adult Down Syndrome Center at UPMC – Pittsburgh
Down Syndrome Center of Western Pennsylvania – Pittsburgh |
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Affiliation: | UPMC Children’s Hospital of Pittsburgh, UPMC Montefiore Hospital and UPMC Shae Medical Center | |
Summary: | The Down Syndrome Center of Western PA (DSC) provides comprehensive medical assessments to pediatric and adult patients. The DSC also refers to other specialists who have expertise in meeting the needs of people with Down syndrome. The DSC has developed a Healthy Transitions program for our adolescent patients to successfully transition to adult medical care and future planning. | |
Ages Served: | All | |
Hours and Days of Operation: | Days and times vary by provider. | |
Address: | Down Syndrome Center of Western PA, UPMC Children’s Hospital, 4401 Penn Ave., Pittsburgh, PA 15224 | |
Website: | www.chp.edu/our-services/down-syndrome | |
Email: | DownSyndromeCenter@chp.edu | |
Appointments: | 412-692-7963 | |
General Phone Number: | 412-692-7963 | |
Clinical Director: | Kishore Vellody, MD | |
Services provided: | ||
Other Services Provided: | General Internal Medicine | |
Year Established: | 1989 | |
Patients with Down Syndrome Seen Annually: | 700 | |
Length of Waitlist: | 3-4 months | |
Medicaid Accepted: | Yes | |
Insurance Accepted: | Yes |
Eastern Pennsylvania Down Syndrome Center – Trexlertown |
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Summary: | The Eastern Pennsylvania Down Syndrome Center’s services include: (1) Comprehensive and specialized medical assessments for infants, children and adolescents by one of our physicians (90 minutes in length); (2) Referral of patients to specialists who have an interest in meeting the needs of individuals with Down syndrome; (3) Screening by developmental occupational therapist; (4) Collaboration between medical staff and the patient’s primary care physician; (5) Family support and resources/information to members and community. | |
Ages Served: | Infants, children and adolescents | |
Hours and Days of Operation: | 2 days per week – by appointment only | |
Address: | 6900 Hamilton Blvd., Trexlertown, PA 18087 | |
Website: | www.epdsc.net | |
Email: | TheEPDSC@gmail.com | |
Appointments: | 610-402-0184 | |
General Phone Number: | 610-402-0184 | |
Clinical Director: | Dr. Donald Levick | |
Services provided: | ||
Year Established: | 1999 | |
Patients with Down Syndrome Seen Annually: | 80-90 | |
Length of Waitlist: | 4-6 months | |
Medicaid Accepted? | Yes | |
Insurance accepted? | Yes |
Jefferson Continuing Care Program – Philadelphia |
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Summary: | Primary care medical home for age 14 and above for patients with ID, DD and other complex childhood onset conditions | |
Ages Served: | 14+ | |
Address: | Jefferson Health 3 Crescent Dr Philadelphia, PA 19112 |
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Website: | https://hospitals.jefferson.edu/departments-and-services/family-and-community-medicine/ | |
General Phone Number: | 215-503-7136 |
Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia |
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Affiliation: | Children’s Hospital of Philadelphia | |
Summary: | Our program offers a multidisciplinary team approach to the evaluation and ongoing treatment of the medical, developmental and behavioral health needs of children and adults with Down syndrome. We serve individuals from infancy through adulthood. The program supports the individuals, their families and their healthcare teams by providing education, healthcare collaboration and a comprehensive review of developmental, behavioral, educational, psychosocial and medical issues common in individuals with Down syndrome. | |
Ages Served: | All | |
Hours and Days of Operation: | Pediatric clinics are held on alternating Tuesdays and Thursdays and on the 3rd Wednesday of the month. Adult clinic is held on the first Monday of the month. | |
Address: | Trisomy 21 Program – Children’s Hospital of Philadelphia, 34th Street & Civic Center Boulevard, Philadelphia, PA 19104 | |
Website: | www.chop.edu/centers-programs/trisomy-21-program | |
Email: | trisomy21@email.chop.edu | |
Appointments: | 267-426-5283 | |
General Phone Number: | 267-426-5283 | |
Clinical Director: | Program Director – Mary Pipan, MD; Co-Director – Kim Schadt, MSN, CRNP | |
Services provided: | ||
Year Established: | 2003 | |
Patients with Down Syndrome Seen Annually: | 1,000 | |
Length of Waitlist: | 6 to 9 months | |
Medicaid Accepted? | Yes | |
Insurance accepted? | Yes |
Adult Down Syndrome Center at UPMC |
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Affiliation: | UPMC Montefiore | |
Summary: | The Adult Down Syndrome Center of Western Pennsylvania provides comprehensive medical care for adults with Down syndrome. Our multi-disciplinary team ensures patients receive everything from holistic care and support to education and resources in a compassionate environment for patients, families and caregivers. | |
Ages Served: | 18 years and up | |
Hours and Days of Operation: | 6 sessions per month | |
Address: | Adult Down Syndrome Center 9th floor UPMC Montefiore 200 Lothrop Street Pittsburgh, PA 15213 |
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https://www.upmc.com/services/adult-down-syndrome-center | ||
Email: | DownSyndromeCenter@upmc.edu | |
Appointments: | 412-692-7963 | |
General Phone Number: | 412-692-7963 To reach Program Coordinator, call 412-692-8264 |
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Clinical Director: | Dr. Peter Bulova and Dr. Anna Marie White | |
Services provided: | ||
Year Established: | 1989 | |
Patients with Down Syndrome Seen Annually: | 200 | |
Length of Waitlist: | N/A | |
Medicaid Accepted? | Yes | |
Insurance accepted? | Yes |