Pennsylvania Down Syndrome Medical Care Centers


There are currently 3 Down syndrome medical care centers in Pennsylvania:


Down Syndrome Center of Western Pennsylvania – Pittsburgh

Affiliation: UPMC Children’s Hospital of Pittsburgh, UPMC Montefiore Hospital and UPMC Shae Medical Center
Summary: The Down Syndrome Center of Western PA (DSC) provides comprehensive medical assessments to pediatric and adult patients. The DSC also refers to other specialists who have expertise in meeting the needs of people with Down syndrome. The DSC has developed a Healthy Transitions program for our adolescent patients to successfully transition to adult medical care and future planning. 
Ages Served: All
Hours and Days of Operation: Days and times vary by provider.
Address: Down Syndrome Center of Western PA, UPMC Children’s Hospital, 4401 Penn Ave., Pittsburgh, PA 15224
Website: www.chp.edu/our-services/down-syndrome
Email: DownSyndromeCenter@chp.edu
Appointments: 412-692-7963
General Phone Number: 412-692-7963
Clinical Director: Kishore Vellody, MD
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Pediatrician
Other Services Provided: General Internal Medicine
Year Established: 1989
Patients with Down Syndrome Seen Annually: 700
Length of Waitlist: 3-4 months
Medicaid Accepted: Yes
Insurance Accepted: Yes


Eastern Pennsylvania Down Syndrome Center – Trexlertown

Summary: The Eastern Pennsylvania Down Syndrome Center’s services include: (1) Comprehensive and specialized medical assessments for infants, children and adolescents by one of our physicians (90 minutes in length); (2) Referral of patients to specialists who have an interest in meeting the needs of individuals with Down syndrome; (3) Screening by developmental occupational therapist; (4) Collaboration between medical staff and the patient’s primary care physician; (5) Family support and resources/information to members and community.
Ages Served: Infants, children and adolescents
Hours and Days of Operation: 2 days per week – by appointment only
Address: 6900 Hamilton Blvd., Trexlertown, PA 18087
Website: www.epdsc.net
Email: TheEPDSC@gmail.com
Appointments: 610-402-0184
General Phone Number: 610-402-0184
Clinical Director: Dr. Donald Levick
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Year Established: 1999
Patients with Down Syndrome Seen Annually: 80-90
Length of Waitlist: 4-6 months
Medicaid Accepted? Yes
Insurance accepted? Yes


Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia

Affiliation: Children’s Hospital of Philadelphia
Summary: Our program offers a multidisciplinary team approach to the evaluation and ongoing treatment of the medical, developmental and behavioral health needs of children and adults with Down syndrome. We serve individuals from infancy through adulthood. The program supports the individuals, their families and their healthcare teams by providing education, healthcare collaboration and a comprehensive review of developmental, behavioral, educational, psychosocial and medical issues common in individuals with Down syndrome.
Ages Served: All
Hours and Days of Operation: Pediatric clinics are held on alternating Tuesdays and Thursdays and on the 3rd Wednesday of the month. Adult clinic is held on the first Monday of the month.
Address: Trisomy 21 Program – Children’s Hospital of Philadelphia, 34th Street & Civic Center Boulevard, Philadelphia, PA 19104
Website: www.chop.edu/centers-programs/trisomy-21-program
Email: trisomy21@email.chop.edu
Appointments: 267-426-5283
General Phone Number: 267-426-5283
Clinical Director: Program Director – Mary Pipan, MD; Co-Director – Kim Schadt, MSN, CRNP
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Year Established: 2003
Patients with Down Syndrome Seen Annually: 1,000
Length of Waitlist: 6 to 9 months
Medicaid Accepted? Yes
Insurance accepted? Yes

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