Global Down Syndrome Foundation
Research & Medical Care
Down Syndrome Medical Care Centers
Pennsylvania Down Syndrome Medical Care Centers

Pennsylvania Down Syndrome Medical Care Centers

There are currently 5 Down syndrome medical care centers in Pennsylvania:

Down Syndrome Center of Western Pennsylvania – Pittsburgh
Eastern Pennsylvania Down Syndrome Center – Trexlertown
Jefferson Continuing Care Program – Philadelphia
Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia
Adult Down Syndrome Center at UPMC – Pittsburgh

Down Syndrome Center of Western Pennsylvania – Pittsburgh
Affiliation:	UPMC Children’s Hospital of Pittsburgh, UPMC Montefiore Hospital and UPMC Shae Medical Center
Summary:	The Down Syndrome Center of Western PA (DSC) provides comprehensive medical assessments to pediatric and adult patients. The DSC also refers to other specialists who have expertise in meeting the needs of people with Down syndrome. The DSC has developed a Healthy Transitions program for our adolescent patients to successfully transition to adult medical care and future planning.
Ages Served:	All
Hours and Days of Operation:	Days and times vary by provider.
Address:	Down Syndrome Center of Western PA, UPMC Children’s Hospital, 4401 Penn Ave., Pittsburgh, PA 15224
Website:	www.chp.edu/our-services/down-syndrome
Email:	DownSyndromeCenter@chp.edu
Appointments:	412-692-7963
General Phone Number:	412-692-7963
Clinical Director:	Kishore Vellody, MD
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Pediatrician
Other Services Provided:	General Internal Medicine
Year Established:	1989
Patients with Down Syndrome Seen Annually:	700
Length of Waitlist:	3-4 months
Medicaid Accepted:	Yes
Insurance Accepted:	Yes

Eastern Pennsylvania Down Syndrome Center – Trexlertown
Summary:	The Eastern Pennsylvania Down Syndrome Center’s services include: (1) Comprehensive and specialized medical assessments for infants, children and adolescents by one of our physicians (90 minutes in length); (2) Referral of patients to specialists who have an interest in meeting the needs of individuals with Down syndrome; (3) Screening by developmental occupational therapist; (4) Collaboration between medical staff and the patient’s primary care physician; (5) Family support and resources/information to members and community.
Ages Served:	Infants, children and adolescents
Hours and Days of Operation:	2 days per week – by appointment only
Address:	6900 Hamilton Blvd., Trexlertown, PA 18087
Website:	www.epdsc.net
Email:	TheEPDSC@gmail.com
Appointments:	610-402-0184
General Phone Number:	610-402-0184
Clinical Director:	Dr. Donald Levick
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	1999
Patients with Down Syndrome Seen Annually:	80-90
Length of Waitlist:	4-6 months
Medicaid Accepted?	Yes
Insurance accepted?	Yes

Jefferson Continuing Care Program – Philadelphia
Summary:	Primary care medical home for age 14 and above for patients with ID, DD and other complex childhood onset conditions
Ages Served:	14+
Address:	Jefferson Health 3 Crescent Dr Philadelphia, PA 19112
Website:	https://hospitals.jefferson.edu/departments-and-services/family-and-community-medicine/
General Phone Number:	215-503-7136

Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia
Affiliation:	Children’s Hospital of Philadelphia
Summary:	Our program offers a multidisciplinary team approach to the evaluation and ongoing treatment of the medical, developmental and behavioral health needs of children and adults with Down syndrome. We serve individuals from infancy through adulthood. The program supports the individuals, their families and their healthcare teams by providing education, healthcare collaboration and a comprehensive review of developmental, behavioral, educational, psychosocial and medical issues common in individuals with Down syndrome.
Ages Served:	All
Hours and Days of Operation:	Pediatric clinics are held on alternating Tuesdays and Thursdays and on the 3rd Wednesday of the month. Adult clinic is held on the first Monday of the month.
Address:	Trisomy 21 Program – Children’s Hospital of Philadelphia, 34th Street & Civic Center Boulevard, Philadelphia, PA 19104
Website:	www.chop.edu/centers-programs/trisomy-21-program
Email:	trisomy21@email.chop.edu
Appointments:	267-426-5283
General Phone Number:	267-426-5283
Clinical Director:	Program Director – Mary Pipan, MD; Co-Director – Kim Schadt, MSN, CRNP
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	2003
Patients with Down Syndrome Seen Annually:	1,000
Length of Waitlist:	6 to 9 months
Medicaid Accepted?	Yes
Insurance accepted?	Yes

Adult Down Syndrome Center at UPMC
Affiliation:	UPMC Montefiore
Summary:	The Adult Down Syndrome Center of Western Pennsylvania provides comprehensive medical care for adults with Down syndrome. Our multi-disciplinary team ensures patients receive everything from holistic care and support to education and resources in a compassionate environment for patients, families and caregivers.
Ages Served:	18 years and up
Hours and Days of Operation:	6 sessions per month
Address:	Adult Down Syndrome Center 9th floor UPMC Montefiore 200 Lothrop Street Pittsburgh, PA 15213
	https://www.upmc.com/services/adult-down-syndrome-center
Email:	DownSyndromeCenter@upmc.edu
Appointments:	412-692-7963
General Phone Number:	412-692-7963 To reach Program Coordinator, call 412-692-8264
Clinical Director:	Dr. Peter Bulova and Dr. Anna Marie White
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Clinical Care Coordinator Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	1989
Patients with Down Syndrome Seen Annually:	200
Length of Waitlist:	N/A
Medicaid Accepted?	Yes
Insurance accepted?	Yes

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