California Down Syndrome Medical Care Centers
There are currently 5 Down syndrome medical care centers in California:
- Center for Down Syndrome – Palo Alto
- CHOC Children’s Down Syndrome Program – Orange
- Rady Children’s Hospital San Diego Down Syndrome Center – San Diego
- UC Irvine Adult Down Syndrome Clinic – Orange
- UCSD Adult Down Syndrome Clinic – La Jolla
Return to the U.S. map and continue searching.
Center for Down Syndrome |
||
| Affiliation: | Lucile Packard Children’s Hospital | |
| Summary: | The Center for Down Syndrome at Lucile Packard Children’s Hospital helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Packard Children’s is one of the few children’s hospitals in the nation to offer these much needed services to children. | |
| Ages Served: | 0-18 Years | |
| Hours and Days of Operation: | 2 Fridays a month, 1-5 p.m. | |
| Address: | 730 Welch Road, Palo Alto, CA 94304 | |
| Website: | http://www.stanfordchildrens.org/en/service/down-syndrome | |
| Appointments: | 650-721-5804 | |
| General Phone Number: | 650-721-5804 |
|
| Clinical Director: | Melanie Ann Manning, MD | |
| Services provided: | ||
| Year Established: | 2006 | |
| Patients with Down Syndrome Seen Annually: | Approximately 120 | |
| Length of Waitlist: | 6-7 months | |
| Medicaid Accepted? | Yes | |
| Insurance accepted? | Yes | |
CHOC Children’s Down Syndrome Program-An Alliance with the Down Syndrome Association of Orange County |
||
| Affiliation: | CHOC Children’s, Orange, CA | |
| Summary: | The mission of the CHOC Children’s Down Syndrome Program is to support families and primary care pediatricians in optimizing the health care of children with Down syndrome in the Southern California Region.Comprehensive medical assessment of children with Down syndrome from birth to age 18 years. Continuing follow-up care (to be assessed and coordinated with primary care physicians and families based on individual needs). Referrals as required to other sub-specialists and ancillary services. Coordinated care for each patient will be managed by our staff | |
| Ages Served: | Birth to age 18 years | |
| Hours and Days of Operation: | Wednesday afternoons from 1-5 pm | |
| Address: | CHOC Children’s – 455 S. Main St. Orange, CA 92868 | |
| Email: | downsyndrome@choc.org | |
| Appointments: | 888-770-2462 | |
| General Phone Number: | 714-509-3609 | |
| Clinical Director: | Dr. Ira T. Lott and Dr. Anne Tournay | |
| Services provided: | ||
| Year Established: | 2009 | |
| Patients with Down Syndrome Seen Annually: | 150-200 | |
| Length of Waitlist: |
Average wait time for a new patient appointment is 2-3 months though urgent referrals are available |
|
| Medicaid Accepted? | Yes | |
| Insurance accepted? | Yes | |
Rady Children’s Hospital San Diego Down Syndrome Center – San Diego |
||
| Affiliation: | Rady Children’s Hospital, San Diego, Down Syndrome Action parent group | |
| Summary: | Mission: To improve the quality of life for children with Down syndrome and their families by offering coordinated assessments, connections to resources, education, and advocacy. At clinic, we combine implementation of AAP guidelines, multidisciplinary medical/developmental assessment, genetic counseling, case management, social work, and social services. | |
| Ages Served: | Birth to 18 years | |
| Hours and Days of Operation: | Birth to 5 seen on the 2nd and 4th Tuesday of the month: 8am to Noon 6 to 18 seen on the 5th Tuesday of the month: 8am to Noon |
|
| Address: | 7920 Frost Street, suite 200 (Clinic Location), San Diego, CA 92123 | |
| Website: | http://www.rchsd.org/programs-services/down-syndrome-center/ | |
| Email: | tholt@rchsd.org lgist@ucsd.edu |
|
| Appointments: | 858-246-0794 | |
| General Phone Number: | 858-966-6170 | |
| Clinical Director: | Lauren Gist, MD, MPH, UCSD | |
| Services provided: | ||
| Year Established: | 2008 | |
| Patients with Down Syndrome Seen Annually: | Approx. 140 with about half being return patients | |
| Length of Waitlist: | 3-4 months | |
| Medicaid Accepted? | Yes | |
| Insurance accepted? | Yes | |
UC Irvine Adult Down Syndrome Clinic |
||
| Summary: | The clinic provides specialty medical assessment and care for adults with Down syndrome and Alzheimer-type dementia. The clinical team has many years of experience in the evaluation of dementia in adults with Down syndrome and is committed to improving quality-of-life in affected individuals and their families. The presenting symptoms of dementia in adults with Down syndrome are numerous and require careful evaluation as several medical conditions can mimic a dementia. Every individual with Down syndrome age 40 and older should receive an annual assessment for Alzheimer-type dementia. | |
| Ages Served: | Adult | |
| Hours and Days of Operation: | Clinic is open every Thursday 8 am to 5 pm. Other weekday appointments are available as needed. | |
| Address: | UC Irvine Medical Center, Department of Pediatrics,101 The City Dr. Orange, CA 92868 | |
| Email: | edoran@uci.edu | |
| Appointments: | 714-456-8443 | |
| General Phone Number: | 714-456-8443 | |
| Clinical Director: | Ira T. Lott, MD/Program Director | |
| Services provided: | ||
| Year Established: | 1990 | |
| Patients with Down Syndrome Seen Annually: | 150-200 | |
| Length of Waitlist: | 2-4 weeks | |
| Medicaid Accepted? | Yes | |
| Insurance accepted? | Yes | |
UCSD Adult Down Syndrome Clinic |
||
| Affiliation: | UC San Diego Health System | |
| Summary: | This clinic provides evaluation for Alzheimer’s dementia in older adults with Down Syndrome. | |
| Ages Served: | 35 years and older | |
| Hours and Days of Operation: | First Monday afternoon of every month | |
| Address: | 4510 Executive Drive, Suite 325, San Diego, CA 92121 | |
| Website: | http://neurosciences.ucsd.edu/conditions/pages/down-syndrome.aspx | |
| Email: | adultDS@ucsd.edu | |
| Appointments: | 858-657-8540 | |
| General Phone Number: | 858-657-8540 | |
| Clinical Director: | Michael Rafii, MD, PhD | |
| Services provided: | ||
| Year Established: | 2010 | |
| Patients with Down Syndrome Seen Annually: | 60 | |
| Length of Waitlist: | 2-3 months | |
| Medicaid Accepted? | Yes | |
| Insurance accepted? | Yes | |
Experience our inspirational and groundbreaking videos and photos. Our children and self-advocates are beautiful AND brilliant!
Make sure your local Representatives are on the Congressional Down Syndrome Task Force.
Keep up with research news, upcoming programs, events and educational conferences.
Find us online here: