California Down Syndrome Medical Care Centers

There are currently 6 Down syndrome medical care centers in California:

Center for Down Syndrome – Palo Alto
Charlie’s Clinic – Oakland
CHOC Children’s Down Syndrome Program – Orange
Rady Children’s Hospital San Diego Down Syndrome Center – San Diego
UC Irvine Adult Down Syndrome Clinic – Orange
UCSD Adult Down Syndrome Clinic – La Jolla

CHOC Children’s Down Syndrome Program-An Alliance with the Down Syndrome Association of Orange County

Affiliation:

CHOC Children’s, Orange, CA

Summary:

The mission of the CHOC Children’s Down Syndrome Program is to support families and primary care pediatricians in optimizing the health care of children with Down syndrome in the Southern California Region.Comprehensive medical assessment of children with Down syndrome from birth to age 18 years. Continuing follow-up care (to be assessed and coordinated with primary care physicians and families based on individual needs). Referrals as required to other sub-specialists and ancillary services. Coordinated care for each patient will be managed by our staff

Ages Served:

Birth to age 18 years

Hours and Days of Operation:

Wednesday afternoons from 1-5 pm

Address:

CHOC Children’s – 455 S. Main St. Orange, CA 92868

Email:

downsyndrome@choc.org

Appointments:

888-770-2462

General Phone Number:

714-509-3609

Clinical Director:

Dr. Ira T. Lott and Dr. Anne Tournay

Services provided:

Year Established:

2009

Patients with Down Syndrome Seen Annually:

150-200

Length of Waitlist:

Average wait time for a new patient appointment is 2-3 months though urgent referrals are available

Medicaid Accepted?

Yes

Insurance accepted?

Yes

Rady Children’s Hospital San Diego Down Syndrome Center – San Diego

Affiliation:

Rady Children’s Hospital, San Diego, Down Syndrome Action parent group

Summary:

Mission: To improve the quality of life for children with Down syndrome and their families by offering coordinated assessments, connections to resources, education, and advocacy. At clinic, we combine implementation of AAP guidelines, multidisciplinary medical/developmental assessment, genetic counseling, case management, social work, and social services.

Ages Served:

Birth to 18 years

Hours and Days of Operation:

Birth to 5 seen on the 2nd and 4th Tuesday of the month: 8am to Noon
6 to 18 seen on the 5th Tuesday of the month: 8am to Noon

Address:

7920 Frost Street, suite 200 (Clinic Location), San Diego, CA 92123

Website:

http://www.rchsd.org/programs-services/down-syndrome-center/

Email:

tholt@rchsd.org
lgist@ucsd.edu

Appointments:

858-246-0794

General Phone Number:

858-966-6170

Clinical Director:

Lauren Gist, MD, MPH, UCSD

Services provided:

Year Established:

2008

Patients with Down Syndrome Seen Annually:

Approx. 140 with about half being return patients

Length of Waitlist:

3-4 months

Medicaid Accepted?

Yes

Insurance accepted?

Yes

UC Irvine Adult Down Syndrome Clinic

Summary:

The clinic provides specialty medical assessment and care for adults with Down syndrome and Alzheimer-type dementia. The clinical team has many years of experience in the evaluation of dementia in adults with Down syndrome and is committed to improving quality-of-life in affected individuals and their families. The presenting symptoms of dementia in adults with Down syndrome are numerous and require careful evaluation as several medical conditions can mimic a dementia. Every individual with Down syndrome age 40 and older should receive an annual assessment for Alzheimer-type dementia.

Ages Served:

Adult

Hours and Days of Operation:

Clinic is open every Thursday 8 am to 5 pm. Other weekday appointments are available as needed.

Address:

UC Irvine Medical Center, Department of Pediatrics,101 The City Dr. Orange, CA 92868

Email:

edoran@uci.edu

Appointments:

714-456-8443

General Phone Number:

714-456-8443

Clinical Director:

Ira T. Lott, MD/Program Director

Services provided:

Year Established:

1990

Patients with Down Syndrome Seen Annually:

150-200

Length of Waitlist:

2-4 weeks

Medicaid Accepted?

Yes

Insurance accepted?

Yes

UCSD Adult Down Syndrome Clinic

Affiliation:

UC San Diego Health System

Summary:

This clinic provides evaluation for Alzheimer’s dementia in older adults with Down Syndrome.

Ages Served:

35 years and older

Hours and Days of Operation:

First Monday afternoon of every month

Address:

4510 Executive Drive, Suite 325, San Diego, CA 92121

Website:

https://medschool.ucsd.edu/som/neurosciences/centers/down-syndrome-center/Pages/default.aspx

Email:

adultDS@ucsd.edu

Appointments:

858-657-8540

General Phone Number:

858-657-8540

Clinical Director:

Michael Rafii, MD, PhD

Services provided:

Year Established:

2010

Patients with Down Syndrome Seen Annually:

Length of Waitlist:

2-3 months

Medicaid Accepted?

Yes

Insurance accepted?

Yes

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Charlie’s Clinic
Affiliation:	UCSF Benioff Children’s Hospital Oakland
Summary:	The Down Syndrome Clinic at UCSF Benioff Children’s Hospital in Oakland is the only Down syndrome clinic in the East Bay. Its multidisciplinary team offers comprehensive services for children and adolescents with Down syndrome. The clinic provides medical and developmental services. A team experienced in the care of children with Down syndrome thoroughly reviews each child’s medical history, informed by the American Academy of Pediatrics guidelines. Each visit also focuses on development, educational progress, behavioral concerns, and independence with activities of daily living.
Ages Served:	0-21 years
Hours and Days of Operation:	Charlie’s Clinic takes place Monday afternoon. We can sometimes accommodate other days/times.
Address:	5220 Claremont Ave Oakland CA 94618
Website:	www.charliesclinic.org
Email:	noemi.spinazzi@ucsf.edu
Appointments:	Please have PMD refer to Down Syndrome Clinic at UCSF Benioff Children’s Hospital Oakland. Call 510-428-3301
Clinical Director:	Noemi Spinazzi, MD
Services provided:
Behavioral MD Psychologist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Pediatric Nurse Practitioner Genetic Counselor Feeding Specialist Pediatrician
Other Services Provided:	Our Physical Therapist is also an infant development specialist
Year Established:	2016
Patients with Down Syndrome Seen Annually:	~200-300 visits yearly
Length of Waitlist:	2-3 months. Newborns will be seen faster
Medicaid Accepted?	Yes
Insurance accepted?	Yes, except for Kaiser insurance

California Down Syndrome Medical Care Centers

Center for Down Syndrome

Charlie’s Clinic

CHOC Children’s Down Syndrome Program-An Alliance with the Down Syndrome Association of Orange County

Rady Children’s Hospital San Diego Down Syndrome Center – San Diego

UC Irvine Adult Down Syndrome Clinic

UCSD Adult Down Syndrome Clinic

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Center for Down Syndrome
Affiliation:	Lucile Packard Children’s Hospital
Summary:	The Center for Down Syndrome at Lucile Packard Children’s Hospital helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Packard Children’s is one of the few children’s hospitals in the nation to offer these much needed services to children.
Ages Served:	0-18 Years
Hours and Days of Operation:	2 Fridays a month, 1-5 p.m.
Address:	730 Welch Road, Palo Alto, CA 94304
Website:	http://www.stanfordchildrens.org/en/service/down-syndrome
Appointments:	650-721-5804
General Phone Number:	650-721-5804
Clinical Director:	Melanie Ann Manning, MD
Services provided:
Behavioral MD Psychologist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Pediatric Nurse Practitioner Genetic Counselor Feeding Specialist Developmental Pediatrician
Year Established:	2006
Patients with Down Syndrome Seen Annually:	Approximately 120
Length of Waitlist:	6-7 months
Medicaid Accepted?	Yes
Insurance accepted?	Yes