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Down Syndrome Medical Care Centers in the U.S.
Indiana Down Syndrome Medical Care Centers

Indiana Down Syndrome Medical Care Centers

There are currently 3 Down syndrome medical care centers in Indiana:

Center for Youth & Adults with Conditions of Childhood (CYACC), Riley Children’s Health at IU Health Physicians – Indianapolis
Deaconess Riley Children’s Specialty Center – Down Syndrome Clinic – Newburgh
Down Syndrome Clinic – Indianapolis

Center for Youth & Adults with Conditions of Childhood (CYACC), Riley Children’s Health at IU Health Physicians, Indianapolis, IN
Affiliation:	Riley Hospital for Children at Indiana University Health
Summary:	CYACC is a state grant funded program to help youth in Indiana with special healthcare needs ages 11-22 to transition to adult life.
Ages Served:	Age 11 – Age 22
Hours and Days of Operation:	Monday through Friday, 8:00 AM-5:00 PM
Address:	Riley Hospital for Children at IU Health: Eskenazi Health Center West 38th Street 5515 W. 38th St., Indianapolis, IN 46254
Website:	https://www.rileychildrens.org/departments/center-for-youth-adults-with-conditions-of-childhood
Appointments:	Clinics are offered Mondays, Wednesdays, and Thursdays. Visits can last 2-3 hours and include meeting with a parent liaison, nurse, social worker, and physician. All areas of life are discussed, and recommendations, referrals, and resources are provided to support patients with transition needs. Care coordination is also offered following the visit. Patients return based on level of transition needs.
Phone Number:	317-880-0953
Clinical Director:	Dr. Mary Ciccarelli and Dr. Jason Woodward
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Clinical Care Coordinator Feeding Specialist
Other Services Provided:	Internal Medicine & Pediatrics Physicians Nursing Parent Liaison as education specialist Training for medical professionals on pediatric to adult transition needs
Year Established:	2007
Patients with Down Syndrome Seen Annually:	30-50
Length of Waitlist:	3 weeks – 2 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Deaconess Riley Children’s Specialty Center – Down Syndrome Clinic, Newburgh, IN
Affiliation:	Deaconess Hospital and Riley Hospital for Children
Summary:	For patients with Down syndrome, we offer an outpatient pediatric specialty care clinic atop our14 ongoing specialty services and clinics in the Deaconess Riley Children’s Specialty Center located on our Gateway Campus. In just six months, we provided more than 4,000 patient visits for kids with serious and complex medical issues, including Down syndrome. That saves families time and money – an estimated 350 mile trip from Evansville to the Riley Hospital in Indianapolis and back and about $200 in gas money for each office visit! Call for appointments.
Ages Served:	Birth – Age 18 *may vary depending on location
Hours and Days of Operation:	Monday through Friday 8a-4p (CST)
Address:	Gateway Campus: 4209 Gateway Blvd. Suite 1100, Newburgh, IN 47630
Website:	Website: https://www.deaconess.com/Services/Childrens-Services/Deaconess-Riley-Children%e2%80%99s-Services Facebook: https://www.facebook.com/DeaconessHealthSystem Instagram: https://www.instagram.com/deaconesshealth/
Contact:	https://www.deaconess.com/Services/Childrens-Services/Contact-Us
Appointments:	812-858-3131, Schedule upon referral from primary care physician
Phone Number:	Fax for Referrals: 812-858-3140
Clinical Director:	Jerrica McDonald, Practice Manager
Services Provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Clinical Care Coordinator Geneticist/Pediatrician
Other Services Provided:	Cardiology, electrophysiology cardiology, endocrinology, pulmonology, nephrology, urology, gastroenterology, infectious disease, psychiatric medication management, NICU developmental follow-up, autism evaluations (ages 18-42 months), Riley surgery follow-up.
Year Established:	2006
Length of Waitlist:	Varies based on specialty
Medicaid Accepted?	Indiana, Illinois, and Kentucky Medicaid Accepted
Insurance Accepted?	Yes

Down Syndrome Clinic, Indianapolis, IN
Affiliation:	Peyton Manning Children’s Hospital
Summary:	Our center offers comprehensive appointments in our Down Syndrome Clinic to children birth-7 years. Needs are assessed by the following providers: Medical Genetics, Genetic Counselor, Endocrinology, ENT, and Audiology. Support services available as outpatient referrals include Social Work, Dietician, Speech, Occupational, and Physical therapies. All other pediatric specialist referrals from the Peyton Manning Children’s Hospital service line are made on an as needed basis. After age 7 years, patients are transitioned to Medical Genetics Clinic for follow up with Dr. Escobar or the Medical Genetics Nurse Practitioner. After age 18 years, patients are transitioned out of clinic to all adult services. All new patient referrals over the age of 12 years, are reviewed on a case by case basis to best meet patient needs.
Ages Served:	Birth – Age 25
Hours and Days of Operation:	Monday through Friday, 8:30 am to 3:30 pm
Address:	8402 Harcourt Rd. Suite 300, Indianapolis, IN 46260
Website:	https://healthcare.ascension.org/locations/indiana/inasc/pmch/departments-and-services/departments/down-syndrome-clinic
Appointments:	Phone: 317-338-5288 Fax: 317-338-7154
Phone Number:	317-338-5288
Clinical Director:	Luis F. Escobar, MD
Services provided:
Behavioral MD Psychologist Nutritionist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Clinical Care Coordinator Pediatrician Feeding Specialist
Other Services Provided:
Patients with Down Syndrome Seen Annually:	600
Length of Waitlist:	Depending on age, approximately 2-3 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

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